I'm making time to post right now because it needs done and because I like proving my husband wrong. He has started giving me a hard time about the frequency of my post. I know, the nerve, right? We have a month to catch up on and oh what a month it has been.
The beginning of the month started with a first official hair cut and a very exciting visit to the cardiologist.
Finally, after not making much progress we were seeing improvements. He would not have anything to do with this the first time I tried and as you can see here, he was finally loving it. I had frozen small portions of the broth/juices from some chicken and dumplings and vegetable soup and he would be occupied eating/playing in the juices and I was able to get a full yogurt down on feeding trial days. I was feeling good about life. Thinking maybe we will actually get rid of these tube feeds after all. :0)
I promise you he is as rotten as he is handsome. :0) This was at the cardiologist. Bricen had a small PDA and ASD at birth. Two small holes. I was pretty sure we would get a good report at this visit and from the recent echo. But, the week of I started to let my mind wonder. What if it was bad news? No worries though because it was great news. His echo was essentially normal. He has a small murmur that we will keep an eye on but nothing to worry about!!! God is great!
This same appointment/clinic visit he received his booster flu shot and a synagis injection.
We were pretty busy those couple days. The day before we had went to Target, got his hair cut and ate at O'Charley's. Then after this appointment we went to Aunt Kim's baby shower that evening and Bricen was staying at Aunt Bri's house that night so I could work the next day and Marty could go hunting coyotes (no comment). I usually try to keep him in a little bubble. I don't know if him doing well had given me this false sense of protection or what.
I dropped him off around ten. By 3:30am Brianna was calling me saying Bricen was throwing up and it wasn't his normal, it was a continuous throwing up and now gagging non stop. It was all downhill from there.
I will sum it up for you. Two ER visits, a hospital stay for dehydration, three calls to the pediatrician in the beginning, a visit in the office with the regular pediatrician, a call to the GI doc at Riley's nurse, GI doc's dietitian, some zofran, two stool samples as outpatient (with lots of frustration due to idiotic and rude lab people) and still following up with the pediatrician even today with phone calls and last but not least texting with speech therapy.
During all this his mouth was of course so dry. Milk did not sit well but I wanted to offer something. Even though we had not gotten a swallow study with extra thins technically, we tried some water in the sippy cup. Definite aspiration. Not ready for that.
The verdict? C Diff. I believe it started with a stomach flu because my sister, her husband, son and my husband had flu like symptoms after Bricen's started. I could rant and rave about the fact that Cdiff testing was delayed and how I kept saying it smelled like Cdiff but that just gets me worked up and I prefer to be happy happy happy.
We are better now. Thank God. And I am totally giving God the glory for this. No antibiotic to treat the Cdiff was given. By the time they called to say that's what it was his symptoms were improving. Here is the last few weeks in pictures.
First trip to ER and sent home with Zofran.
Poor pumpkin still felt horrible.
Second trip to the ER. I did not take them long to decide he would be admitted.
Everyone was still saying virus. I was still saying it smelled like C Diff. He mostly slept in the beginning. A little bit of play time would result in a good nap.
He loves when you can turn the camera around on your phone so he can see himself. :0)
As he was starting to feel better it became harder to keep him occupied. He saying "Are you sure we are allowed to be doing this dad?"
And now he's looking at me like "Are we, mom? Are we allowed to be doing this or is dad lying?"
I love this picture.
The view was better at night.
Do not even get me started on his weight and how we take one step forward and two steps back.
This toilet...They have very nice rooms now at Riley since the Simon Towers opened. But this toilet troubled me. I could just envision myself sitting on it, the toilet coming off the wall, me and the toilet in the floor with water spewing everywhere and my pants around my ankles.
Daddy eventually had to go back to work. It was hard to keep this guy happy. We made a tent this day. Only mom and dad were allowed to visit because of how bad the flu had been this year. I understand the importance but it sure did make life harder.
Going home!!!!
We were not all better when we went home. We were just hoping they were right and it was a virus that should start improving. They were wrong. It continued once we got home. This is where my awesome friends and coworkers come in. Sometimes it's hard to think things through as a mom and a nurse. I could not have made it thru this without my friends. It was constantly keeping track of wet diapers, poo, questioning Dr's, rethinking his symptoms, deciding when we need to call again, go back, give pedialyte vs formula vs half and half etc etc. I just kept thinking this can not be just a virus. As I said he is better and that's all that matters. But I am thankful for friends and coworkers!!
This is what happens when your mom can't keep up on laundry and you are longer than you are wide. You end up in a sleeper that's too small and looks like you are wearing capri sleepers.
If this doesn't scream redneck baby, idk what does. Bricen was pretty weak when we first got home. He would crawl instead of walk, and then when he started to walk he would stumble and fall. It broke my heart but my little fighter bounced back quickly.
This is a random catch up picture. We have been trying to work our way to the big boy bath. This was the second attempt. I was standing int he bathtub saying something like "Come on Buddy. It's not that bad, I promise." haha
We have made some progress...this counts, right?
And this is where we are now. Bleaching the house, toys, clothes and anything else we see fit. We do not want to relive these past three weeks! Overall we are slowly checking his conditions off the list. We have these hiccups to deal with along the way which are harder on this little guy than the average kid. So for those individuals that say I can't keep my kid in a bubble and yada yada I'd like to say "blah blah blah." :0)
And last but not least...during all this God blessed our family with a healthy baby Lyla...We have yet to spend time with her because of obvious reasons but are headed there this afternoon. I. can. not. wait!!!!
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