He has been doing so well at trying whatever I give him. He will take it to his mouth, stick that little tongue out and taste it. That's about it. Haha If he does get a piece in his mouth he works it with his tongue until he has it spit back out. If it happens to get in the back he gags. Poor fella just hasn't figured it out yet. I worry because even though he is doing well sticking that tongue out and trying things he seems to want to do the same with the spoonfuls of yogurt. Instead of taking a bite of yogurt he just wants to lick the spoon. And yobaby or yotoddler yogurt is what is going to get us to be able to cut out more tube feeds. It's whole milk and good solid calories. I also feel like he's getting set back with the sippy cup too. So I guess we will take a step back and go back to our original cup from Speech Therapy at Riley. I'm not sure what to do about the yogurt. I text Riley but haven't heard back yet. Is this just going to work itself out? Should I be going about things differently? She's not quite the superstar at getting back to me as she used to be. I tell myself there are other reasons but have to wonder if it's just because this is where we are with Bricen right now and she don't have much more to add. Stay the course, right? That's what I tell myself a lot of the time.
On another note Bricen is doing...I hate to even say it. It's like on a nursing unit, especially true for my ICU if someone says the quiet word things get unquiet real quick. Anyways, he is doing so well with spit ups!!! I'm just gonna say it. I've noticed even when he gets hurt and I'm prepared and ready, convinced he will have a huge throw up, I am seeing him swallow over and over, working on keeping his feeds down. We see GI next week and I'm excited to get to report that he is doing fantastic with his reflux. I'm thankful that (and I'll knock on wood) we didn't have to have the Nissen surgery and we did not have to go to continuous feeds at night! That was the talk last time we saw GI. And pretty much every provider we saw. Haha They would allll ask, "Did he have the surgery so that he couldn't throw up?" and I would say, "The Nissen surgery, no he hasn't." And they would go on about how it's something we might want to consider. Then I would have to state my case such as he hasn't had a ton of hospitalizations for pneumonia, in fact not even one. Weight gain is not fantastic but not horrible (their words, not mine). And throwing up is the bodies natural way to give some relief. Why oh why would I want to do that to Bricen? So I could watch him sit and wretch and dry heave. He does that enough as it is. For some, such as my sister with CP, it was a beneficial surgery but not one that I was willing to entertain the thoughts of for Bricen. Anyways, Gods still working on this little guy and I'm thankful. P.S. For anyone wondering, there are days that I'm not as thankful and I'm bitter. Uh..I'd say hours. I just don't like being that person. But on those days, those hours my "thankfulness" gets on my own nerves. :0) :0)
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