Last week was a whirlwind of a week. I had to be at work Monday and Tuesday at 8am for orientation type stuff for our move to South campus. Even though I only had to be there a few hours each day it sure did mess up our week. Then Wed and Thursday we had Dr. appointments and Friday O.T. came for a visit. Then it was Saturday and Sunday and time for work again. Those moms that work five days a week are going to hate me for saying this but some weeks my five days off flies by! Nonetheless, we made it.
We are still having problems with tolerating feeds. :( We had gotten up to 90mls with each feed by Friday but Saturday was a horrible day for Bricen and Marty so we went back down a little to 87mls. Bricen was just miserable during after and before feeds. We saw Speech Therapy Thursday of last week. I shared my frustration with eating and with the aggressive schedule the inpatient dietitian had us on. Bricen had started gagging the first dropper I would put in his mouth when trying oral feeds. She said maybe he is just too full from the increase on calorie and volume. I confirmed with her that the nectar thick with the dropper did not show aspiration on the swallow study. It made me feel better just to recheck and make sure I wasn't putting food in this little guys lungs. So for now our oral feedings are on hold. Speech shared my concerns with the Development Pediatrician and she called me Monday.
Basically we agreed that Bricen is a tough one to figure out. We are switching from Prilosec to Prevacid. She mentioned the idea of going up to 30kcal formula. (sigh...and I actually just signed after I typed that.) I am going to drag my feet on that idea for as long as I can. Give his belly time to adjust. I shared with her that we had a surgery on his belly and then increased kcal and volume aggressively and I just didn't feel it was a good idea to try the 30kcal right now. Not to mention if I remember right while in NICU they shared that as the calorie content goes up the stomach is slower to move things out so the GERD can actually get worse. But also it makes him have loose stools. We've already seen an increase with the 27kcal and fighting diaper rashes daily. So in the end she didn't push for it. Already with the increase to 27kcal he makes this face during feeds like you just put something horrible tasting in his mouth.
We saw the regular Pediatrician today and as silly as it sounds I was somewhat hoping Bricen had an ear infection since he had been messing with his ear and this would cause increase in vomiting etc. His ears looked good. I know, who would hope their kid has an ear infection? I hung up with Developmental Peds with the plan that (assuming no ear infection to blame things on) she would talk to Speech Therapy about trying cereal again and we need to see a GI Dr. at Riley to make sure we aren't missing anything. We've tried erythromycin to increase motility and he didn't tolerate that. They don't like to put little ones on Reglan because it can cause neuro problems. I don't like the idea of going to GI because they will probably want to put him thru testing to figure stuff out but I think it's a good idea to make sure we aren't missing anything. Dietary is going to be calling to touch base and come up with a new game plan too. I'm going to work on my attitude between now and then. :) :) I am reminding myself that there are lots worse problems we could be dealing with.
We've started using the boppy to nap on. He still looks so small sleeping in it. I love to watch him sleep so had to capture a few moments.
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