Today was pretty miserable for Bricen. It wasn't fun for me either. Poor kid stooled all day long. His bottom is broke out. And he was also spitting up/puking over and over from the same feed. My plan is to call Riley tomorrow and tell them what my game plan is. We are going back to what he was on before surgery, 85ml every three hours on the 22kcal formula. Once his belly settles we can add one change at a time. We changed so many things after surgery there is no way to tell what is causing the problem. I know this might look bad. My kid has fallen off the growth chart and is considered malnourished but I promise you he is not going to gain weight by increasing calories and volume and making him spit up more and diarrhea more. That's the bottom line. Not to mention his belly is so upset he is not tolerating anything in his mouth. I feel like we are taking steps backwards in that department as well. And most importantly, it's impossible to trouble shoot when you make so many big changes all at the same time. Some of this trouble could simply be the G tube.
There is such an emotional roller coaster involved with parenting but I think this is intensified when you are parenting a child with medical needs. I dread making that phone call in the morning. At the same time I'm so frustrated and tired of watching Bricen go through this that it doesn't matter. There is the possibility of teething but I'm doubtful if that's the problem. If he was fussy because of teething he should feel a little better after giving Tylenol and I see no difference. Time will tell. I've said it before and I'll say it again. I'm just frustrated. And while I appreciate the expertise of the doctors and the input of other people, I'm tired of feeling pressured by other people to change Bricen's diet when Marty and I know this kid better than anyone else. When it comes down to it we are the parents. I'm hopeful that we can increase calories or volume once we get his belly settled and I know how important it is to try.
We have a lot of pictures to catch up on....
Mom was experimenting with the stroller again. Poor kid would really do well with a stroller made to snap in an infant seat but we don't have an infant seat. We have the car seat that Riley suggested that's best for kids with airway obstructions and it's a convertible one that doesn't snap in a stroller.
He has actually come a long way and is improving on head control. He should be ready for walks soon.
10lbs 4oz at the Dr getting the last synagis injection!
Yes, I turned the big 30! Man, I'm old. This was the super cute cake Bricen and Aunt Bri put together for me.
No one wanted to eat Bricen. Haha.
This was another Dr. visit. Our only one for the week. Yay! He looks like such a little man in this picture.
Time to come up with plan B because Bricen is pulling the blankets under his head on top of his head now. :)
Hey, handsome!
It was beautiful weather but Bricen just didn't feel like enjoying it. We stepped out on the porch and then had to run back inside because he started to gag. I have to say, he sure does know how to rock some shades!
This is his new bed. It's a pack and play but a smaller version that can fit to move from room to room. Bricen does has a beautiful furniture set in his room. (Thank you, Grandma Juanita.) Maybe by the time he's in Kindergarten his mom will feel comfortable letting him sleep in his own room. :0)
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