Thursday, September 12, 2013

Uncharted Territory




The dog food bowl is still too hard to resist for Bricen. 

They get rather sad when they can't come out too . 

Lyla and Tiff joined us for a walk. 


We are on day three of three. We have done three day trials in the past but not just giving two tube feeds a day. Uncharted territory. So far it's not going so well. I was praying and hoping day three would be the trick. I realize its early. Something else I realize is on feeding trial weeks I'm going to have to plan all household chores and any other chores around those days. I've got a clingy fussy baby on my hands and I've seen some impressive fits the last couple days. In fact, last night at church he was licking on a mint and then put it all in his mouth which made me nervous. So i took it away. This sweet baby started hitting his mama! We had our first lesson in no hitting. And I will confess he got another one. Don't judge, it was 8pm and he had one feed all day and that was around noon and he wanted nothing to do with the food I'd offered before we came or the snacks I had.  As any parent w special needs kids will tell you, discipline is not always black and white. I guess thats the case with other kids too. I do remember my sister "sitting in the corner" with her wheelchair pushed in the corner because she pulled the baby sitting kids hair because she wanted the toy they had! Haha 

Anyways, I tried sitting at the table for breakfast. I've already given myself more than one pep talk about how I need to stay calm and happy. So now we are trying sittin together watching cartoons with a sippy cup and Cheerios. When he was sick a couple weeks ago two mornings in a row he went to town on his sippy cup. It was awesome. I know he can do it! We are always trying new things. I think the next trial I will have a few things and stick with them the three days. Therapy is just always suggesting things and we try to build off anything he shows interest in. But he's not really consistent. And every time I buy something new I am so hopeful that will be the one item he sits and chows down on. For a kid that barely eats he sure does add to that grocery bill already! Ha So, fam and friends, if we cross your mind today please say a prayer for us. I know I feel almost silly asking when there are babies fighting for their lives and we are talking about eating. It's no walk in the park but I know we can do it! :) 

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