Just a Vent

Alright, here's my vent. We have the pump out again. Trying anything to get him to tolerate some fluids/food. Why does this bother me so much? I keep telling myself it's just temporary. And of course it's worth it if it helps perk him up. But I just hate that pump. 

As much as I would and have worked in the past when we were using it to keep it from restricting him from being a kid, it just does. Not a big deal right now bc he's weak and not up and playing.

Just praying A it helps him tolerate half strength and perks him up. B praying we get back to syringe Bolus sooner than later once he starts feeling better.

Even when we used the pump it was over an hr for ea feed. So if we continue I would have to either try to get my 2 yr old to sit still for an hr every three hrs for a Total of five times a day or help him learn to wear the backpack that's over half as long as he is and then mess with air getting in the tubing, tubing getting pulled on, irritation to the stoma, etc. Again, we would so totally do it and lots of parents/kiddos do but I would/do def feel like we were/are taking steps backwards. And once again, I find myself irritated with those people parents that say "you can't keep him in a bubble." Well this is what happens when my kiddo gets a stomach bug. The fight to keep him out of the hospital. Seeing him lose precious wt we try so hard for. Etc etc. And don't even get me started on the negative effects on his oral feeding. And def don't get me started on what a "cold" does for his breathing....

Just got a call back f the doc, which we had seen Tuesday, they are calling in some zofran. If it doesn't help they say take him to Riley. Did I mention it's Friday, I should be at work and suppose to be there the next two days. Ugh all that is stressful but it is what it is, I'd just really like this little guy to get back to himself. My husband has been coming home-washing the bottles, feeding the dogs, pulling up some Tylenol and gas drops, taking out the trash, etc etc. (The bottle comment throws people off-we just use em to measure and heat up feeds.) Just all the stuff that helps keep things going when Bricen is stuck like glue to his momma. I had a single mom and I have the up most respect for all the single mommas out there! Special needs kiddos or not! Funny. That country song, Stuck like Glue, I've been singing it to Bricen all week. ;) seems fitting! Still lots to be thankful for, Could always be worse. Love love love this little guy bigger than the sky!