Reed All About It!

          We got to get out of the house Thursday for a Synergist injection (helps keep RSV away) so we wore some clothes that were too big for Bricen not too long ago.  Bricen cried appropriately and in true Jenny Pieper style I couldn't help but chuckle at him as I comforted him. I was not however laughing when he was cranky the next 24hrs. Poor fella.

    

          We worked hard on therapy exercises and activities as well as trying the dropper. Here are some pics of Bricen trying to work on neck control and to be able to breathe but lay on his back enough to get the back of that head flatter. :) :)

 

          It's Saturday evening and I have been home since about 4:30. I had to leave work early to come home and put Bricen's NG back down. He had taken it out and no one else was able to get it in. Part of the problem was that his cheeks are getting some breakdown so I was trying to put the tape in a different spot to help his little cheeks heal. Once I got home and put it down I have been taping this thing over and over all day/night. How are we going to keep him from getting at this now and as he gets older? He will go to town itching that nose on whatever he can rub it on.

          Speech Therapist keeps telling me every time we go that if I think we are ready for a G tube to just give her the word and she'll get the ball rolling. I've never really thought I wanted to put him through it until tonight. I know NGs are meant to be short term. He does not do well with intubation because of his small chin. And I've found the things that we would give adult patients sedation or pain meds for they don't give it to the babies. I. simply. do. not. understand. this. (For example, his bronch). I am afraid we are quickly heading that direction. I'm also afraid my expectations for eating are quickly being rained on because of the way things keep going in the opposite direction. If he has to have a tube, so be it. My sister had one, then replaced with a button and then my mom had a GJ tube. I'm just worried about him actually having the procedure done. Seems like it should be a simple little procedure but nothing is simple with my family and especially not this little pumkin'. Lots to think about.

          Another reason I came home was because his alarm kept going off for high heart rate. Marty said it was in the 260's. It happened about three times. During which he was not mad or upset. Hasn't happened since. Hope that goes away and stays away. Again, lots to think about.